Today we told Samantha about Doug's situation. How do you explain the magnitude of something like this to a 5 year old? We basically told her that Doug has been going to the doctors a lot because his muscles aren't working right. It means that he has trouble with his walking and stuff, and that his balance isn't very good. Her job, as a big sister, is to help him out when he is having problems. She is supposed to be more aware of when she is playing running and pushing games with him that he will fall down easier - and it's not his fault. I also asked her to help watch out for him when playing with other kids. Maybe having some protective responsibility will help her feel like she's part of the support team.
I guess time will tell.
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