Something is missing here...

Today is a frustrating day.

Poor Douglas sits downstairs, watching TV. It's not what he wants to do, it's not what we want him to do, and it's not what is best for him. But it's what is happening.

Why?

Because we are dealing with his "administrative" side. We've got more medical opinions and diagnosis than I knew existed, and with them are suggested treatment programmes. To help us with the treatment programmes, there is funding. To get the funding, you have to do the paperwork. It's ongoing. So, instead of teaching and playing with Doug, Allison sits in my office filling out forms. Once those are complete - we get to track down, interview, and book various therapists for him. At least we could - if someone could point us to a good one! It feels so wrong to just pick a name at random from a phone book. But to find a good one, requires research, and THAT requires more time. And Douglas sits in front of the TV.

As a result of all the extra help that he needs/gets, he gets to spend less time with us - because we need to "manage" it all. We want to find the best possible help for him - but at what cost? Where do we draw the line between finding the best help, and saving enough time and energy for our family life?

Make it all stop.